{"id":11,"date":"2023-11-18T14:25:24","date_gmt":"2023-11-18T14:25:24","guid":{"rendered":"https:\/\/curtaustin.com\/driftingthrudysautonomia\/?p=11"},"modified":"2023-11-18T20:51:16","modified_gmt":"2023-11-18T20:51:16","slug":"when-everything-is-different","status":"publish","type":"post","link":"https:\/\/curtaustin.com\/driftingthrudysautonomia\/2023\/11\/18\/when-everything-is-different\/","title":{"rendered":"When Everything is Different"},"content":{"rendered":"

\"\"<\/p>\n

At some point this year, my life changed. It started as a gradual shift from being active, engaged, social to a version of myself that is fatigued, cane-using, doctor-visiting, discouraged.<\/p>\n

What started as gradual, raged with a vengeance and all of the sudden, my life was different. The\u00a0 sound of Cicadas buzzing in my ears is ever-present.\u00a0 My ability to walk several miles was replaced with a struggle to make it to the end of the yard and back. Daily naps and early bedtimes paired with wobbly legs and a spinning sensation. These and many other symptoms are the new normal.\u00a0<\/p>\n

All-in-all, not the way I wanted to enter my golden years.<\/p>\n

<\/p>\n\n\n

For all the testing, all the poking and prodding, all the labs, scans, and therapies, I’m still left with less than certainty about my future. And to be honest, it’s pretty frustrating.<\/p>\n\n\n\n

Dysautonomia<\/a> is my current working diagnosis. It’s a disease with 15 different types and 70 million suffers world-wide. It can present with a wide range of symptoms; as many as 200 different symptoms are attributed to autonomic dysfunction.<\/em><\/strong> I’m grateful I’ve only experienced 30, but believe me, that’s enough, thank you.<\/p>\n\n\n\n

This blog and the posts to come, are about a journey that is familiar to many and an absolute mystery to most. It’s a way for me to process my experience and get my thoughts and feelings on a page. It’s not going to be eloquent. It won’t be perfect. It’s probably going to have ups and downs. But I want it to be honest. And if someone turns it into a movie with George Clooney playing the lead roll, I’m okay with that.<\/p>\n\n\n\n

But most of all, I’m hoping it can be a discussion point. I’m not looking for sympathy, that doesn’t help anyone. I’m not looking for homeopathic remedies or your cousin’s uncle’s brother’s sister’s thoughts on the matter. I’d love to hear YOUR story. What has YOUR journey been like for YOU?<\/p>\n\n\n\n

When suddenly, or even slowly, everything is different, what does it mean for you?<\/p>\n","protected":false},"excerpt":{"rendered":"

This blog is about a journey that is familiar to many and an absolute mystery to most. It’s a way for me to process my experience and get my thoughts and feelings on a page. It’s not going to be eloquent. It won’t be perfect. It’s probably going to have ups and downs. But I want it to be honest. And if someone turns it into a movie with George Clooney playing the lead roll, I’m okay with that.<\/p>\n","protected":false},"author":1,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":"","jetpack_publicize_message":"","jetpack_publicize_feature_enabled":true,"jetpack_social_post_already_shared":false,"jetpack_social_options":{"image_generator_settings":{"template":"highway","default_image_id":0,"font":"","enabled":false},"version":2}},"categories":[2],"tags":[],"class_list":["post-11","post","type-post","status-publish","format-standard","hentry","category-diagnosis"],"jetpack_publicize_connections":[],"jetpack_featured_media_url":"","jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/curtaustin.com\/driftingthrudysautonomia\/wp-json\/wp\/v2\/posts\/11","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/curtaustin.com\/driftingthrudysautonomia\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/curtaustin.com\/driftingthrudysautonomia\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/curtaustin.com\/driftingthrudysautonomia\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/curtaustin.com\/driftingthrudysautonomia\/wp-json\/wp\/v2\/comments?post=11"}],"version-history":[{"count":8,"href":"https:\/\/curtaustin.com\/driftingthrudysautonomia\/wp-json\/wp\/v2\/posts\/11\/revisions"}],"predecessor-version":[{"id":36,"href":"https:\/\/curtaustin.com\/driftingthrudysautonomia\/wp-json\/wp\/v2\/posts\/11\/revisions\/36"}],"wp:attachment":[{"href":"https:\/\/curtaustin.com\/driftingthrudysautonomia\/wp-json\/wp\/v2\/media?parent=11"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/curtaustin.com\/driftingthrudysautonomia\/wp-json\/wp\/v2\/categories?post=11"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/curtaustin.com\/driftingthrudysautonomia\/wp-json\/wp\/v2\/tags?post=11"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}